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All Posts in Category: News

ALZHEIMER’S: NOT JUST A MEMORY THING

By: Eva Roszkowski
Community Engagement Manager
Alzheimer’s Association

Alzheimer´s

Eva and her dad Henry

“We will run additional tests to confirm but it seems that your father has Early Onset Alzheimer’s” he said. I was at NYU’s Langone Center, sitting with my dad’s neurologist when I first heard these words. At the time, my father was 56. I was 24. I barely knew how to spell the name of the disease, let alone what to expect. Eight years later I am in the position to share my story and bring attention to the sobering fact that millennials are not as far removed from dementia as commonly thought.

Since my dad’s diagnosis I’ve had to say countless times that “Alzheimer’s is not just a memory disease.” There were a multitude of personality changes that I was not prepared for when my father was in the early stages. His vocabulary changed. He could no longer manage finances or organize personal documents. His logical thinking was severely hindered — I witnessed him cross the street when cars were flying towards him. He was more confused and reticent when it came to expressing himself. He was no longer the man I had known my entire life.

THE MILLENNIAL EXPERIENCE

I reached out to the Alzheimer’s Association very early on after my father’s diagnosis was confirmed. The person I spoke to referred me to a support group for caregivers under 30. I couldn’t believe that there were other people my age who were dealing with this, but there were.

Having this disease in your life when you are in the process of beginning your own life is uniquely distressing. The people in my support group were NOT just like me. Some were fresh out of law school, some were accountants, some were engaged, some had just moved to the city and were hundreds of miles from home. But there were also countless parallels to our stages in life: recent graduates, young professionals who were trying to define a career path for themselves, individuals who were preparing to leave the nest, people who were in serious relationships and figuring out next steps. We were in the beginning stages of some very exciting things on the horizon. But we all had Alzheimer’s or dementia in our life that was slowing our momentum.

Some millennials may think that Alzheimer’s is an “old people” disease, or reduce it to being a “memory disease”. Certainly, there is truth in age being the biggest risk factor but it is not the only risk factor to Alzheimer’s. Aside from this general misrepresentation, there is still somewhat of a stigma associated with Alzheimer’s and dementia because we currently have no cure for it and no truly effective treatment avenues. There are drugs available that address the symptoms of the disease, but do not slow the progression of it. Naturally there is fear around this disease because we don’t fully understand the cause of it yet.

COMMUNITY EDUCATION AND THEN SOME

The major components of my role at the Alzheimer’s Association are community outreach and community education. In my work, I speak from the heart because I want to see an end to this disease. Additionally, I am an adviser for the Young Professionals Alzheimer’s Council (YPAC) which is an auxiliary board of the Alzheimer’s Association’s Hudson Valley Chapter. The group consists of millennials committed to creating a world without Alzheimer’s. Our events throughout the year will seek to engage our communities in and around the lower Hudson Valley in the fight against Alzheimer’s. This group is intended for those with a personal connection to the disease, as well as those who do not have a connection but would like to learn more and contribute in the fight against it. And on top of that, it can also serve as a support system for those who may have family members affected by the disease.

Simply put, the intent behind YPAC is greater millennial involvement in the cause. Via programs such as TrialMatch and fundraising opportunities through Walk to End Alzheimer’s and The Longest Day, our generation can be part of finding a cure. We want to galvanize young professionals to promote engagement. With aging Baby Boomers and a longer life expectancy, there is more of a chance that the younger population will be dealing with Alzheimer’s disease in their home.

I can say without hesitation that Alzheimer’s affects young professionals differently, and I can only hope that those who get involved are as excited as I am for the endless possibilities and impact we can have on the cause.

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Good Scout Award 2018

With great appreciation, at The Diversity Good Scout Award Breakfast as the Good Scout Honorees.

We are very happy to be part of a great cause!

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Reflect and Reset with Maria & Gina. Episode 20

Do you or someone you know have an elderly parent or disabled family member?

If you answered yes, please watch our show, where we will be speaking with Henriette Kole, Vice President of Archcare Senior Life, a faith based organization that provides holistic care for people unable to fully care for themselves.

Tune in to learn more about these services and options available for eligible individuals.

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Forme Medical at the 2018 WMCHealth PPS Partner Summit & Quality Meeting

Yesterday, we had the honor of participating in the 2018 WMCHealth PPS Partner Summit & Quality Meeting; celebrating collaborations with the PPS DSRIP Program. Formé Medical Center was privileged to be one of the PPS Medical Neighborhoods working with an amazing team of committed, knowledgeable and focused individuals.  Through their guidance and support, we accomplished recognition as a Level 3 Patient Centered Medical Home and continue to collaborate on innovative programs to address gaps in care in an effort to help the community in need.  We would also like to thank Westchester Medical Center for providing the platform for us to share our “Medical Membership Program”  for the uninsured.  We look forward to collaborating on future projects and a continued partnership.  

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Reflect And Reset With Maria & Gina. Episode 19

In this episode we had a special guest. Michelle Santiago and I spoke about our most recent accomplishments and all we have been working on, in preparation for Formé’s appreciation month.

“Let us be grateful to people who make us happy; they are the charming gardeners who make our souls blossom”. Marcel Proust.

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Reflect And Reset With Maria & Gina. Episode 18

When was your last visit to the dentist? Most of us avoid those necessary trips to the dentist because of excessive cost…But fortunately we have a solution.

Formé Medical Center has teamed up with Touro Dental College, to offer affordable dental treatments. We visited Touro Dental College in Hawthorne NY with the Vice Dean, Dr. Edward Farkas.

Learn about the wonderful resources available to you to ensure your good oral health!

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Reflect and Reset With Maria & Gina. Episode 17

Did you ever imagine that you could name your own price for healthcare?

On this episode of Reflect and Reset with Maria and Gina Dr. David Berman, Founder and CEO of Slingshot Health, talks about an innovative new company that lets you name your price for healthcare services.

Formé Medical Center and Slingshot have teamed up to bring you high-quality healthcare that won’t break the bank!

Learn how here!

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Risks of losing your Green Card for Receiving Some Public Benefits

By Lyda Marcela Tyburec, Esq,

The Trump Administration Officials announced on September 22, 2018, a new Executive Order with proposed changes to the definition of public charge as basis for denying admission, green cards and visas applications.

If this rule is implemented it would prevent immigrants from securing lawful permanent residence and would prevent them remaining with their families in the USA simply because they receive some type of health care support, nutrition assistance or other vital services.

When is this change going to be in effect?

The Order at this moment is only a proposal and it requires execution and implementation. It will take some weeks before the proposed Order goes into effect, but the public will have the opportunity to prevent the proposed Order from becoming law by submitting comments once the proposed Order is published in the Federal Register.

What are the proposed changes?

The proposed Order seeks to re-define and expand the list of programs that qualify as public charge. Some of the public benefits to be designated in this proposal are federal, state, local, or tribal cash assistance for income maintenance, Temporary Assistance for Needy Families (TANF),

Supplemental Security Income (SSI), Medicaid (with limited exceptions for Medicaid benefits paid for an “emergency medical condition,” and for certain disability services related to education), Medicare Part D Low Income Subsidy, the Supplemental Nutrition Assistance Program (SNAP, or food stamps), institutionalization for long-term care at government expense, Section 8 Housing Choice Voucher Program, Section 8 Project-Based Rental Assistance, and Public Housing.

The first three benefits listed above are cash benefits that are covered under current policy.

What to do?

My recommendation is for individuals to get as informed as possible and seek legal advice before receiving public benefits to avoid possible future complications. It is important to understand that the proposed rule does not include some benefits that U.S. children are entitled to receive like prenatal care, WIC, or other health- or food-related benefits.

In addition, the public should be preparing to comment on this proposed Order and be ready to inform the administration that the implementation of this proposed Order will weaken our country by threatening the health and well-being of families around the country.

Lyda Marcela Tyburec, Esq,
Immigration Attorney
Phone: 347 446 4704
lyda.tyburec@arrufatlaw.com

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